GLOBAL PLATFORM

Europe Direct data protection privacy statement

 

Processing operation: Europe Direct Contact Centre

Data Controller: Directorate-General Communication; Strategy & Corporate Communication; Unit “Interinstitutional Relations, Corporate Contracts EDCC”

Record reference: DPR-EC-00080

Introduction

The European Commission (hereafter ‘the Commission’) is committed to protect your personal data and to respect your privacy. The Commission collects and further processes personal data pursuant to Regulation (EU) 2018/1725 of the European Parliament and of the Council of 23 October 2018 on the protection of natural persons with regard to the processing of personal data by the Union institutions, bodies, offices and agencies and on the free movement of such data (repealing Regulation (EC) No 45/2001).

This privacy statement explains the reason for the processing of your personal data, the way we collect, handle and ensure protection of all personal data provided, how that information is used and what rights you have in relation to your personal data. It also specifies the contact details of the responsible Data Controller with whom you may exercise your rights, the Data Protection Officer and the European Data Protection Supervisor.

The information in relation to processing of data in connection with the free information service “Europe Direct Contact Centre”, undertaken by the European Commission’s Directorate-General for Communication and its unit ” Interinstitutional Relations, Corporate Contracts & EDCC” is presented below.

Why and how do we process your personal data?

The DG Communication Unit “Interinstitutional Relations, Corporate Contracts & EDCC” (referred to hereafter as the Data Controller) collects and uses your personal information in order to provide you with direct, personalised answers to general questions on the EU. In particular, we need to store your contact information in order to be able to reply to you.

Your personal data will not be used for an automated decision-making, including profiling.

On what legal ground(s) do we process your personal data?

We process your personal data, because:

  • processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the Union institution or body;
  • the data subject has given consent to the processing of his or her personal data for one or more specific purposes.
    This is in accordance with Regulation (EU) 2018/1725 of 23 October 2018 on the protection of natural persons with regard to the processing of personal data by the Union institutions, bodies, offices and agencies and on the free movement of such data, in particular article 5(1).

Which personal data do we collect and further process?

In order to carry out this processing operation, we collect the following categories of personal data:

  • The provision of certain personal data is mandatory in order for the Europe Direct Contact Centre to be able to reply to your question.

    The personal data collected and further processed are:

    • name and surname
    • contact details (e-mail address, nationality, country of residence)
    • preferred and alternative contact languages.

Depending on the type of request, more specific personal data (e.g. telephone number if you contact us by phone) or facts related to your question (e.g. an EU programme you take part it) may be requested.

  • In addition, should you tick the optional checkbox “I authorise the European Commission to add my e-mail to the Europe Direct mailing list” available on the enquiry form, your personal data will be added to the mailing list. The Europe Direct mailing list service allows you to receive information on the EU occasionally.

How long do we keep your personal data?

We only keep your personal data for the time necessary to fulfil the purpose of collection or further processing, including handling of later complaints, namely for maximum 3 years after the date that you submitted an enquiry to the Europe Direct Contact Centre.

How do we protect and safeguard your personal data?

All personal data in electronic format (e-mails, documents, databases, uploaded batches of data, etc.) are stored either on the servers of the European Commission or of its contractor who helps operate the Europe Direct Contact Centre (Communi-K, a consortium between Serco Belgium and Tipik). All processing operations are carried out pursuant to the Commission Decision (EU, Euratom) 2017/46 of 10 January 2017 on the security of communication and information systems in the European Commission.
The Commission’s contractors are bound by a specific contractual clause for any processing operations of your data on behalf of the Commission, and by the confidentiality obligations deriving from the transposition of the General Data Protection Regulation in the EU Member States (‘GDPR’ Regulation (EU) 2016/679).

In order to protect your personal data, the Commission has put in place a number of technical and organisational measures in place. Technical measures include appropriate actions to address online security, risk of data loss, alteration of data or unauthorised access, taking into consideration the risk presented by the processing and the nature of the personal data being processed. Organisational measures include restricting access to the personal data solely to authorised persons with a legitimate need to know for the purposes of this processing operation.

Who has access to your personal data and to whom is it disclosed?

Access to your personal data is provided to the Commission staff responsible for carrying out this processing operation and to authorised staff according to the “need to know” principle. Such staff abide by statutory, and when required, additional confidentiality agreements.

The Commission officials in charge of the Europe Direct Contact Centre have access to your data. Your enquiry is stored on the server of the contractor based in Belgium and, where appropriate, may be forwarded to an official at the EU institution or body who should be able to answer it.

If your enquiry is about your rights under EU law, it may be redirected to another European Commission service, Your Europe Advice (see YEA privacy statement).

If it appears you need the help of national authorities to solve your problem, your enquiry may be transferred to SOLVIT, a problem-solving network that deals with problems between individuals or companies and the authorities in another country, in cases where there is a possible misapplication of EU law (see SOLVIT privacy statement).

If your enquiry concerns the European Parliament, it may be redirected to the Citizens’ Enquiry Unit (Ask EP) of the European Parliament. Likewise, enquiries received by Ask EP may be redirected to the EDCC.

The information we collect will not be given to any third party, except to the extent and for the purpose we may be required to do so by law.

What are your rights and how can you exercise them?

You have specific rights as a ‘data subject’ under Chapter III (Articles 14-25) of Regulation (EU) 2018/1725, in particular the right to access, rectify or erase your personal data and the right to restrict the processing of your personal data. Where applicable, you also have the right to object to the processing or the right to data portability.

You can exercise your rights by contacting the Data Controller, or in case of conflict the Data Protection Officer. If necessary, you can also address the European Data Protection Supervisor (see Contact information below).

Where you wish to exercise your rights in the context of one or several specific processing operations, please provide their description (i.e. their Record reference as specified under “Where to find more detailed information?” below).

Contact information

The Data Controller

If you would like to exercise your rights under Regulation (EU) 2018/1725, or if you have comments, questions or concerns, or if you would like to submit a complaint regarding the collection and use of your personal data, please feel free to contact the Data Controller, Directorate-General Communication, unit “Interinstitutional Relations, Corporate Contracts & EDCC“.

The Data Protection Officer (DPO) of the Commission

You may contact the Data Protection Officer with regard to issues related to the processing of your personal data under Regulation (EU) 2018/1725.

The European Data Protection Supervisor (EDPS)

You have the right to have recourse (i.e. you can lodge a complaint) to the European Data Protection Supervisor if you consider that your rights under Regulation (EU) 2018/1725 have been infringed as a result of the processing of your personal data by the Data Controller.

Where to find more detailed information?

The Commission Data Protection Officer (DPO) publishes the register of all processing operations on personal data by the Commission, which have been documented and notified to him. You may access the register via the following link http://ec.europa.eu/dpo-register.

This specific processing operation has been included in the DPO’s public register with the following Record reference: DPR-EC-00080.

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Access to Healthcare

The Health not The Death is a fundamental human right. A healthy population is not to be seen as human and social capital, an input, or by-product, towards economic growth. Alongside a healthy and sustainable environment, a solidarity, a healthy population must be the ultimate goal especially nowadays in helping Ukrainian migrants with cancer and their families.

Solidarity in health is a cornerstone of EU health policy. There are wide disparities in many health outcomes across the region and those outcomes. The access rules dramatically affect healthcare systems which are at the forefront of the migrant way, the people who are searching for help and the way how we could enhance and support their healthier and wellbeing status.

In order to ensure their access to care and continued cure in need, the probability of receiving a timely diagnosis and of surviving differs greatly from country to country where they are now. There is lack of information, help and inequalities in access. People need help in navigating cancer knowledge, diagnostics, secondary monitoring and prevention, way of treatments, and care.

Shifting our mindset, supporting healthcare connectivity, removing inequalities overall across Europe is our mission and even more now in a time of crisis, helping the Ukrainian people dealing with cancer is a good place to begin this transformative revolution.

1) Whether we have a chance to foster more holistic and integrated approaches to receive information and care, by supporting coordination and maximising an enabling and health-enhancing effect of care across services from different countries?

2) Whether actions should address the social determinants of health, the countries where they are now, the health need which they have, the social and language barriers are the conditions which have to be taken into consideration in a coordinated manner?

How might we improve patients and /or people who seek healthcare support, access to healthcare services at an EU & the Member States Healthcare systems level? Especially in a time of crisis in Europe.

How might we support refugees fleeing from their countries by navigating them to medical centres to receive best available care?  

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Predictive Treatment

Precision medicine aims to personalise care for every individual. Nongenomic and genomic determinants, combined with information from patient symptoms, clinical history, and lifestyle (nutrition, physical activity, stress etc.), can facilitate personalised diagnosis and prognostics. Yet this goal requires access to massive amounts of data which may come from different structured and unstructured sources; these can be our medical records, laboratory testing, a range of medical devices as well as from the patient himself. AI & ML can combine input from these multiple sources, analyse them and identify biomarkers that can support health professionals make more informed decisions. The convergence of precision medicine with the advanced AI capabilities will improve the ability to personalise care – improve diagnosis, risk prediction as well as therapy planning.  

HCPs want to better predict treatment response, given uncertainty around which treatment to prescribe to which patient and when to prescribe. How do we risk assess the patients, match them with the right treatment (personalised). How can we transform the wealth of data and link it to the predictive nature of how the patient will respond?

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Patient Journey Navigation

Being diagnosed with cancer is overwhelming and comes as a blow. Patients may feel on a roller coaster of emotions—they are scared, lost & confused not knowing what to expect, who to refer to, what to do and how to tell their loved ones.  They directly refer to “Dr. Google” to look for information about their disease, possible treatments, QoL strategies with the aim to have better understanding of their disease and learn how to better cope with their disease & treatment, yet information is not always valid, accessible, nor personalised or tailored to the patient’s status and needs therefore left with huge amounts of non-relevant information. Coming to the doctor, the physician’s time is limited and mostly focusing on the physical aspects of the disease & treatment, not leaving much time to ask questions nor discuss more holistic aspects of the disease such as emotional, psychological, social aspects. The patient (& caregiver in many cases) leaves the room with unanswered questions, doesn’t remember much of what has been said, and feels he is not heard, nor seen as a whole.

The need for navigating this journey along the emotional psychological stress is overwhelming & patients and their caregivers look for support (case manager/companion/partner) to help manage their disease holistically – starting from having clarity around their disease and treatment by having access to reliable and personalised information during their journey as well as having an integrated holistic care system , supporting them and their loved ones to navigate through the different aspects of their disease – medical, emotional, logistical, psychological, social, rights.

How can we support patients to navigate through the complexity of their disease and treatment ensuring they have validated holistic information about their disease journey & treatment and be empowered to  effectively manage their care 

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Peer-to-Peer Medical Exchange

As medical events pivoted from conference centres and meeting rooms to the virtual settings, learning opportunities continue. Lectures and presentations are translated to the new digital world, yet the ability to connect and network is relatively lost. Peer interaction is essential not only for information exchange but to share practical insights, allows consultation & in-person experience cross country and across borders leading to better disease management.

This peer-based learning/ consultation is highly valued amongst practising clinicians and was generally achieved when HCPs and KOLs met their peers in national & Intl conferences, group debates, advisory boards and even during quick corridor conversations. Attempting to replicate these in-person experiences into the digital space creates challenges and are not effective nor impactful as face-to-face engagements. 

How might we improve HCP medical exchange enabling physicians to easily communicate, consult, exchange opinions leveraging individual experts & centres of excellence knowledge, experiences, and practices?

How can we leverage the technological expertise to allow HCPs to connect with leading experts across countries to get advice / counselling for their cases?

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Application for 2022Calling2Scale is closed.
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